He's off of his oxygen now almost 2 hrs and seems to be doing great without it! He still has the ng tube in his nose, that might stay until he has fewer oral meds to take. We tried to get him to take the tylenol orally earlier but he refused to eat the tablets and that's only one of the 5 meds he's taking at the moment so we'll leave it in for now.
He's still pretty tired and grumpy. He has started throwing things and getting mad when medical people just come in the room, even the Child Life lady and she's the one who brings the toys!!
We're keeping fairly cool in here, it sounds like everyone else is cooking! They've prescribed an anti-itching medication that we can give J.J. tonight so hopefully that'll help him get a better sleep. We might be able to move to spot checks soon for his 02 which means other than the ng tube he'll be tube/wire-free! He must have had about 25-30 last week! So this is a big improvement! It's definitely getting easier to get around.
There has been talk of maybe going home this weekend, but we'll still take one day at a time!