J.J. was born in 2003 with some heart defects: tetralogy of fallot and an absent pulmonary valve. He had closed heart surgery at 5 days old, then open heart at 3 months old. He spent his first 5 months in the ICU at BC Children's where he was on a ventilator (breathing machine) for 3 months. After his open heart, he was on life support (ECLS) for 4 days. He was on oxygen and an NG feeding tube until he was one. We were told he would need his pulmonary valve replaced between 2-4 years old (it's from a cow and doesn't grow with him). It's great that the valve lasted until he was 6, but now it's time for a new one! He will be getting new valve and conduit.
(click here if you a little more info about valves)